Original research
- Fortier and colleagues, 2010. DataSHaPER approach to integrating bioclinical studies. This paper introduces the platform and the logic for deciding whether variables from different studies support the same interpretation.
- Fortier and colleagues, 2011. Application across 53 large studies. The authors assessed the potential to construct 148 harmonized variables using information from population studies with a combined 6.9 million participants. That population figure describes the studies included in the assessment. It is not a count of participants with a complete common dataset.
- Fortier and colleagues, 2017. Maelstrom Research guidelines. The guidelines give a broader project workflow for preparing, executing and documenting retrospective harmonization.
Related tools and research records
- PhenX Toolkit provides standardized measures and protocols that can inform future data collection.
- Maelstrom Catalogue helps identify research studies and describe the data they collected.
- CARTaGENE researcher information is the official starting point for its Québec cohort and access process.
- The PhenX Toolkit in the research literature describes the purpose of a common set of measures and links to the original DataSHaPER site.
For a quick introduction to target variables and source items, see the methods and glossary.