Former research platform

DataSchemas and the Harmonization Platform

The historical platform organized variable definitions and documented the feasibility of comparing them across studies. This page is a readable reference to those functions.

DataSchemas

A DataSchema describes the variables needed for a defined research purpose. It gives reviewers a common specification for discussing what they want to measure, how the information should be represented and which source materials can support the choice. A schema can help plan new collection or evaluate the potential of existing cohorts.

Four levels of the schema

LevelWhat it groupsIllustrative example
ModuleA mode or broad kind of assessmentQuestionnaire data
ThemeA broad area of interestLifestyle
DomainA more focused factor or outcomeTobacco use
VariableA concept with a specification for analysisCurrent cigarette smoking status

Renal DataSchema

The historical site described a schema developed with GENECURE for chronic kidney disease research. It appeared alongside the platform’s general schema documentation. Read the archive note on the renal schema for context on how a kidney-research variable would be documented and compared.

Harmonization Platform

The collaborative part of the old platform helped teams review a defined target variable against what each study collected. For example, a team evaluating smoking status might compare exact questionnaire wording, response options and recall periods before accepting two source items as comparable. Review decisions and transformation rules can then be recorded and checked.

See the methods and glossary for the review steps. For current research tools, visit the Maelstrom Catalogue or Maelstrom harmonization guidelines. This page contains reference material and provides no account access.